TRAGADY:
The Trans-Tasman Response Against sudden Death in the Young
(Renamed Heart@Heart in 2010)
Introductory article:
Med J Aust. 2008 Nov 17;189(10):539-40.
Skinner JR, Duflou JA, Semsarian C.
"Best-practice guidelines mandate a full postmortem examination in these deaths to identify genetic causes and allow potentially life-saving interventions in the victim's relatives."
TRAGADY- executive summary
May 2008 TRAGADY (Heart@Heart) announced the completion of this best practice guideline document regarding the post-mortem investigation following a young sudden death. This can be viewed by clicking on the words "best practise" below. The document is endorsed by the Royal College of Pathologists of Australasia, the human |Genetic Society of Australia and New Zealand, The cardiac Society of Australia and New Zealand, and the New Zealand Heart Foundation.
Best Practise Guidelines for post-mortem investigation of sudden unexpected death in the young
Useful International contacts and websites
TheHeart (A brief description of how the heart works)
CPVT (catecholaminergic Polymorphic Ventricular Tachycardia)
HCM (hypertrophic cardiomyopathy)
ARVC (Arrythmogenic Right Ventricular Cardiomyopathy)
Lifestyle (Lifestyle modifications in people with inherited heart diseases)
ICD (A description of intracardiac cardioverter defibrillators)
Grief (A few words and some useful contacts)
Heart Screening (screening of relatives of victims of sudden unexplained death)